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We have put together a list of useful websites and articles about Tay-Sachs. If there are any missing or ones you would recommend then please contact us and we will add it to the list.


Cure Tay Sachs
Tay-Sachs Gene Therapy Consortium

Research Articles

Desperate families turn to unproven stem cell treatment
Effective gene therapy in an authentic model of Tay-Sachs-related diseases


What is Tay-Sachs?


  1. Daniel Lewi
    June 21, 2011

    We are currently putting together a whole research section which provides information directly from the main research team looking into Tay-Sachs.

    Please bear with us while we do this, as you can imagine there is a lot of informaton to go through!

  2. Jolene Dejong
    June 22, 2015

    I am trying to learn all I can about Tay Sachs my grandson was just diagnosed .

    • Daniel Lewi
      June 23, 2015

      I am very sorry to hear that – if you would like any more specific information please just let us know.

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