The Cure & Action for Tay-Sachs (CATS) Foundation supports families affected by Tay-Sachs by providing equipment, information and funding respite. The charity is dedicated to finding a treatment for the disease and funds the research into this directly.

Introducing The CATS Foundation

The Cure & Action for Tay-Sachs (CATS) Foundation was set-up in June 2011. At the time, there was no UK based charity dedicated to providing support for families affected by Tay-Sachs disease.

Who set-up the charity?

Daniel and Patricia Lewi set-up The CATS Foundation after their daughter Amelie was diagnosed with Tay-Sachs in March 2011 when she was 15 months old. As there was no charity in the UK covering the disease they spent many long evenings searching for information and support.

Eventually they were put in touch with Professor Timothy Cox who leads the research team investigating Tay-Sachs and a potential treatment. With his support, Daniel and Patricia went ahead with establishing the charity so other families affected by the disease would have access to information and support.

What are the charities objectives?

  • Supporting the research for the public benefit into the causes, prevention, diagnosis and methods of treatment of Tay-Sachs
  • Provision of a support network for families suffering from the effects of Tay-Sachs, including but not limited to, provision of respite holidays for suffers
  • The purchase of equipment not available on the NHS to alleviate suffering and improve conditions of life

How does the charity meet the objectives?

To meet the objectives The CATS Foundation undertakes many fundraising activities to raise funds and also awareness of the disease.

In addition, the charity also visits schools to educate children about the disease to help raise awareness. This has led to The CATS Foundation being adopted as three schools official charities who they raise funds for.