Introducing the eAcademy for Tay-Sachs & Sandhoff Disease app!
We are delighted to announce that to coincide with Rare Disease Day on the 28th February 2015 The Cure & Action for Tay-Sachs (CATS) Foundation is launching the eAcademy for Tay-Sachs and Sandhoff Disease app which we have designed and is ready for download!
What is the eAcademy
In 2014 The CATS Foundation was one of the Genzyme Patient Advocacy Leadership (PAL) Award winners. The charity was awarded a grant of $15,000 to create an app for smartphones and tablets which is aimed at providing caregivers of individuals with Tay-Sachs and Sandhoff information on the diseases, symptom management and many other subjects.
How to download the eAcademy
The eAcademy for Tay-Sachs and Sandhoff Disease app can be downloaded onto a variety of devices using the app stores shown below:
The future for the eAcademy
We hope that this app changes the way in which families affected by Tay-Sachs and Sandhoff disease are able to access information to help in their role as a carer. We have big plans for the eAcademy for Tay-Sachs and Sandhoff Disease app and it will be regularly updated with new content covering new subjects.
At The CATS Foundation we would like to say a big thank you to all the families who took part in the interviews for the app and to those who have agreed to be interviewed in the future. Lastly, we would like to say a big thank you to Genzyme and their PAL Award program which has made the production of this app possible.