2014 Events

Celebrating a successful Family Conference at Disneyland Paris!

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October 2014 was a very busy month for The Cure & Action for Tay-Sachs (CATS) Foundationbecause we were the organisers of the 2nd European Tay-Sachs & Sandhoff Disease Family Conference at Disneyland Paris. This year we had over forty people from six different countries attend the event, which is the initiative of the European Tay-Sachs Charity Consortium (ETSCC) which The CATS Foundation is a founder member.

Important discussions

The family conference is very important in our community as it allows all the families across Europe who have a loved one affected by Tay-Sachs or Sandhoff disease to come together once a year. At the family conference everyone was able to learn about the work the charities of the ETSCC have undertaken, updates on the current research into Tay-Sachs and Sandhoff disease and we were all able to take part in workshops, which allowed for discussion on coping with the diseases. The family conference also allowed for us all to take part in family photo shoots and most importantly enabled us to spend time together and getting to know one another better!

Making new memories

As the family conference was held at Disneyland Paris we were treated with many visits of different characters throughout the weekend and everyone was able to enjoy some time at the theme parks. It was a fantastic opportunity for everyone to take their child to a very positive environment and have some fun!

Photos from the family conference can be found on our Flickr page here and below. We also have a short video of everyone who attended the event, which can be accessed on our Youtube channel here or below.

We would like to say a big thank you to Nikki who arranged a beautiful memorial service with a moving video which can be viewed here, Afra who took all of the photos and family portraits (please visit Afra’s website here┬áto view her work), all the speakers at the conference and finally all the families who could attend. Sadly, there were families who could not attend and they were all missed and we hope they can join us next year.

Blogs

The BPNA Conference 2014

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