5th European Family Conference – date and venue announced!

We are delighted to announce that the 5th European Tay-Sachs and Sandhoff Disease Family Conference is taking place in London on the 16th – 18th June!

All the families throughout Europe will come together at the Amba Hotel, Charing Cross to hear some very intersting talks  about the diseases and latest research. The agenda is currently being finalised and we will share this very soon!

We are currently seeking sponsors for the event so we can make it a success and help our families attend. If you know of anyone who would be interested in sponsoring our Family Conference then please get in touch at

Conference details

All the details for the conference are in the image below!

5th family conference (for review)


The BPNA Conference 2014

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