The Cure and Action for Tay-Sachs Foundation (CATS) was created by the parents and friends of a little girl called Amelie who was diagnosed with Tay-Sachs in March 2011 at the age of 15 months.
Having received the shocking news, Daniel and Patricia spent many hours searching for information about Tay-Sachs and trying to find a support group they could contact. In the US there are two brilliant charities called Cure Tay Sachs and NTSAD who have funded a lot of research and support for families for many years. The work they have and continue to do through fund raising has not only helped put a cure in reach, but they have also provided awareness of the disease.
Within the UK, where Daniel, Patricia and Amelie live, there is only the excellent CLIMB charity who provide support to Tay-Sachs affected families. CLIMB cover all metabolic diseases and it was felt that a more specific charity focusing on Tay-Sachs was required.
So, after a meeting with the leading research team in the area of Tay-Sachs based in Cambridge who are led by Professor Tim Cox and with the support of CLIMB, the Gaucher Association (another metabolic disease charity) and of course other parents in a similar position, THE CATS FOUNDATION was born! Steve W built and launched the website very quickly so that we could all begin raising the awareness of the disease and begin fund raising.
Please read through the charity website and if you have any feedback then use the contact us form. Our aim is to provide information which is useful to the person(s) affected by Tay-Sachs so if we have missed anything then please bring it to our attention.
Daniel & Patricia