Newly diagnosed
Hearing the words “it’s Tay-Sachs” is a life changing event. As a parent, grandparent, other family member or friend these words normally result in two questions – “what is Tay-Sachs?” and “how serious is Tay-Sachs?”.
Most people will not have heard about the disease, including the parents, so it is important to educate everyone involved. By gaining an understanding of exactly what Tay-Sachs is and will involve, will leave you in a better mind set to deal with the challenges ahead caused by Tay Sachs.
At THE CATS FOUNDATION we have put together a list of items which you may want more clarity on after receiving the diagnosis. Simply click on the section which will take you to a page outlining more detailed information. If you feel there is something significant missing then please either use the contact us form to send more information or leave a comment at the bottom of the page.
1. What is Tay-Sachs
This section provides a detailed overview of what Tay-Sachs is.
2. Questions
This section links directly to our FAQ section on the website. There are answers to various questions we have been asked about Tay-Sachs and is constantly being updated. The answers have been provided by families living with the disease and some of the top health care professionals in their field. If you have any questions you would like answered then please contact us.
3. Publications
This section contains useful articles in our resource centre about Tay-Sachs.
4. Support
We use a Facebook group as a forum to be put in touch with other families affected by Tay-Sachs. The forum is called the Tay-Sachs Community group and it can be accessed here.
To enter the group you will have to be approved, so if you have any problems with this then pelase get in touch with us here.
5. Get involved
Contact us to see how you can get involved with The CATS Foundation.