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Family support

At The CATS Foundation we aim to provide a full level of support to a family who is affected by both Tay-Sachs and Sandhoff disease. We believe that it is important that a family does not feel isolated and alone.

Our services

At The CATS Foundation we provide a variety of levels of support to families affected by Tay-Sachs and Sandhoff disease. These range from providing equipment to individuals affected by the diseases to holding conferences for family members to attend and share their experiences.
Family Support
Respite trips
At The CATS Foundation we provide respite funding to all our families and they are given a budget to manage throughout the year.

Family Support
We provide a variety of equipment which is not available via a sufferers healthcare team. Everything we provide is geared towards improving quality of life.

Family Support
Funeral funding
We provide a grant to families to help with the cost of a funeral when their child has lost their battle to Tay-Sachs or Sandhoff disease.

Family Support
Support network
We provide a support network of other families so that when a new diagnosis is made that family does not feel isolated.

Family Support
Family conference
Once a year we get all our families in the UK and Europe together at a family conference to share our experiences and to receive updates on our work.

Our work

The services we provide our family members is very varied and you can read some testimonials of those we have helped in the past.

How Fresenius Kabi can help

Fresenius Kabi

How Fresenius Kabi can help an individual with swallowing difficulties is by focusing on the therapy of chronically and critically ill patients, both in hospitals and at home settings.

Families we support – a swing for Isabella

Isabella on her swing

One of the goals of THE CATS FOUNDATION charity is to help and and support children who suffer from Tay-Sachs Disease to enjoy as normal a life as possible. With this in mind we approached the Trustees of THE CATS FOUNDATION to ask if they could help provide a specialist swing for our garden.

Just Diagnosed

The CATS Foundation

Hearing the words “it’s Tay-Sachs” is a life changing event. As a parent, grandparent, other family member or friend these words normally result in two questions – “what is Tay-Sachs?” and “how serious is Tay-Sachs?”. Most people will not have heard about the disease, including the parents, so it is important to educate everyone involved. By gaining ...[Read More]

Don’t feel like you’re alone

The day that you received the diagnosis that your child had Tay-Sachs will always be one of hardest days of your life. However, don’t feel like you’re alone. There are unfortunately many cases of Tay-Sachs and other lysosomal diseases diagnosed each year all around the world. Each parent, grandparent, sibling or friend will be going through the same emotions as you and it’s impor ...[Read More]