The CATS Marathon of London is the 7th race in the 13 marathons in 13 months challenge Dan How and Dan Lewi are doing for The CATS Foundation
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Jim Beckett is running the Bungay Black Dog Marathon for The CATS Foundation on the 15th April!
Dan How and Dan Lewi completed the Saracens Marathon as their latest race in the 13 marathons in 13 months challenge on the 31st March finishing at Wembley in front of over 80,000 people!
The CATS Foundation is now on TheGivingMachine - this means you can make donations when you shop online!
The CATS Foundation was on Sky Sports 1 on Saturday after Daniel How and Dan Lewi finished the latest marathon at Wembley during half time of the Saracens vs. Harlequins rugby game!
We have both spent the last couple of weeks working out a route for our next marathon and to make sure we are in good shape for the finish – we are going to be finishing in front of 80, 000 people at Wembley which is going to be an amazing experience! Dan has been busy working on his map skills to make sure we don’t get lost on our way while I’ve been training hard and I’m ...[Read More]
The CATS Foundation is on the Saracens at Wembley website which is promoting the 13 marathons in 13 months challenge!
Stephan Walsh, Mark Jackson and I (Matt Lewi) completed the Brentwood Half Marathon on the 25th March for The CATS Foundation!
Here are the photos from the fifth marathon in the 13 in 13 challenge - the race was the London Ultra Marathon!
Here is the latest update on The CATS Foundation - we have been very busy since the beginning of 2012!
Mark Jackson, Matt Lewi and Stephan Walsh are going to be running the Brentwood Half Marathon for The CATS Foundation on the 25th March!
Pierre Walsh and Jon Davey are undertaking The Essex Roads âSpring Lambsâ Sportive cycle race for The CATS Foundation on the 1st April 2012!
Week 19 â 20 has seen us both get back into the swing of training after injuries and hospital visits! Thankfully things are slowly getting back to normal.
In 2006 a research article called âThe Natural History of Juvenile or Subacute GM2 Gangliosidosis: 21 New Cases and Literature Review of 134 Previously Reportedâ was published in the Official Journal of the American Academy of Pediatrics.
Enzyme replacement therapy (ERT) is a medical treatment replacing an enzyme in patients in whom that particular enzyme is deficient or absent.
On Rare Disease Day 2012 the public consultation into rare diseases was launched into looking to improve services for patients and to facilitate research.
You can now donate to The CATS Foundation through JustGiving!
Marathon number 6 in the 13 marathons in 13 months challenge has been specially designed to get some publicity for the charity and will involve the guys running to Wembley and being introduced to the crowd!
Our Change for a Charity challenge has been running for around six months now and we have been able to raise Â£132!
Brian Watson and a few friends took on the St David's Day Run to raise money in the fight against Tay-Sachs!
Week 17 - 18 have been busy for both Danâs â one has been in the gym while the other has been in hospital with Amelie.
Alex Moody has written a piece of music called "Song for Archie" after one of his close friends had a son diagnosed with Tay-Sachs. You can download the song now!
The 5th marathon in the 13 marathons in 13 months challenge was completed on the 19th February which was the London Ultra Marathon!
The CATS Foundation were able to arrange for Archie and his brother Jack to be mascots at the Cardiff Blues vs. Ulster rugby game!
In November 2011 a research article called âNatural History of Infantile GM2 Gangliosidosisâ was published in the Official Journal of the Maerican Acadamy of Pediatrics.
Week 15 - 16 has been tough and resulted in an injury and one of us running the next marathon on their own!
Here are the photos from the fourth marathon in the 13 in 13 challenge! You can read a review of how the marathon went at the 13 in 13 Marathon No.4 â Gloucester Marathon â Event Summary page here.
During 2011 there were plenty of fundraising events held in South Devon for The CATS Foundation!
Rare Disease UK (RDUK) is asking for everyoneâs help in raising political awareness of rare diseases ahead of Rare Disease Day.
Hexosaminidase A (HEX A) is a vital enzyme produced by the body to break down GM2 ganglioside.
The CATS Foundation was mentioned in The Jewish Chronicle on the 2nd February 2012!
The 13 marathons in 13 months challenge is well underway! Here is a short video of how Dan and I are getting on!
The CATS Foundation was mentioned in The Lewisham Mercury on the 1st February 2012!
The next race in the 13 in 13 challenge is the London Ultra Marathon. This will be longest distance we have ever run as it is 50km long rather than the usual 42km long marathon!
The CATS Foundation was mentioned in The London Evening Standard on the 25th January 2012!
During week 14 we have both chilled out! Our bodies are recovering from the Gloucester Marathon and we are planing on upping the training next week.
Although this research article was published in 2006 we thought it was important that the findings in the study titled âEffective gene therapy in an authentic model of Tay-Sachs related diseasesâ were highlighted once again.
The 29th February 2012 marks the fifth international Rare Disease Day which The CATS Foundation is supporting.
We completed the 4th marathon in the 13 marathons in 13 months challenge by finishing the Gloucester Marathon on the 22nd January 2012!
After two fairly heavy weeks of training the weight has thankfully began falling off in week 13, although it seems to get harder to drop as each year goes by!
Amelie's nursery Zoom did a lot of fundraising for The CATS Foundation throughout December and managed to raise nearly Â£400!
The CATS Foundation provides a support network, equipment and information to those families affected by Tay-Sachs.
You can help us raise awareness of Tay-Sachs by inviting the charity into your local school to give a presentation about the disease.
A symptom of Tay-Sachs is abnormal posturing and is something which becomes apparent as the disease progresses - it is known as decerebrate posturing.
During week 12 we have both hit the roads hard this week to build up some of the fitness we lost over Christmas and to also drop some of the weight from excessive eating over the period!
The Great Hockham Farmers Christmas Market was a huge success for THE CATS FOUNDATION! Nicola Bradley had a stall for the charity and was able to raise over Â£130 selling cakes which is an amazing effort!
Here is the Trustee Meeting Summary - November 2011 which was attend by the trustees of The CATS Foundation to discuss the charity
The 13 in 13 Marathon No.4 - Gloucester Marathon is a low key event with only 500 runners!
A new study by Professor Cox and his team was published online in November 2011 which looked at children diagnosed with GM2 gangliosidosis in the UK.
The last few weeks we have both been chilling! This may have been good for morale but not great for training, fitness and waist lines.