Research Announcement – September 2013

Research Announcement – September 2013

A grant for our fight

The Cure & Action for Tay-Sachs (CATS) Foundation is delighted to announce that the UK Medical Research Council have awarded a significant grant to the research team investigating a potential treatment for Tay-Sachs and Sandhoff disease. This grant will allow for their hard work to continue and for a potential trial to begin within the next 2 to 3 years.

A treatment moves a step closer

The significant work which has recently been achieved by the research team in the UK means we are getting closer to winning in our fight against Tay-Sachs and Sandhoff disease.

At the end of July the team were awarded a £2.84 million grant by the UK Medical Research Council. Their work will allow for a potential therapy to stop the onset of these devastating diseases which at the moment claim far too many young lives.

The CATS Foundation would like to express its gratitude to the research team and we are delighted that their hard work has been rewarded in giving some hope to families affected by these awful diseases. We would also like to thank all of our supporters who have helped us get to this significant point in the fight against Tay-Sachs and Sandhoff disease.

Today is most definitely not the end of Tay-Sachs and Sandhoff, but the beginning of a brighter future.

The role of the charity

The CATS Foundation will have an active role in the following months in relation to the research team’s work and the potential trial. This is exciting news for the charity and shows how much progress we have made in such a short space of time. We will have more information on this in the near future.

The future of the charity

Our work at The CATS Foundation does not stop here. Our main focus has always been on supporting families affected by these awful diseases and we will always provide equipment, information and support. So, we ask you to continue supporting The CATS Foundation so we can ensure that families are able to get as much help as possible.

Our hope is that one day there will be a treatment for these diseases but until this is widely available we need people to continue supporting us and raising awareness of the diseases. This is invaluable as it will enable us to continue meeting our charitable objectives and ensuring that no family is left feeling isolated and without a support network.

Thank you for your support,

Daniel Lewi & Patricia Durao Lewi – Founders of The CATS Foundation

Daniel is the father of a little girl called Amelie who was diagnosed with Tay-Sachs in March 2011 when she was 15 months old. After slowly coming to terms with what the future held, Daniel, his wife Patricia and their friends started THE CATS FOUNDATION to raise awareness of the disease and to provide fund raising opportunities so that a potential treatment can be found.

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