Rare Disease Day – 29th February 2012

Rare Disease Day

Rare Disease Day

On the 29th February 2012 there is an international awareness day called Rare Disease Day.

THE CATS FOUNDATION will be supporting this international awarness day by highlighting Tay-Sachs and other rare diseases to the wider community. However, we need your help in doing this so please get in touch with any ideas you may have on raising awareness on this day! More inormation on the day can be found below.

Rare Disease Day is an annual, awareness-raising event co-ordinated by EURORDIS at the international level and the National Alliances of Patient Organisations at the national level

February 29, 2012 marks the fifth international Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 European countries.On this day hundreds of patient organisations from more than 40 countries worldwide are organsing awareness-raising activities converging around the slogan “Rare but strong together”.

Activities will take place across Europe, all the way to Russia, continuing to China and Japan, in the US and Canada, and as far as Australia and New Zealand! Get involved!”

Source: Rare Disease Day website – www.rarediseaseday.org

You can download a poster to give out to people with the date by clicking on the image on the left below. You can also download an information pack about Rare Disease Day here by click on the image on the right below.

Rare Disease Day Poster

Rare Disease Day Info Pack


We will post more information on what we have planned for Rare Disease Day but please feel free to organise your own events on the 29th February. Just let us know what you have planned!

You can get more information on Rare Disease Day here.

Event details

Date 29th February 2012
Event name Rare Disease Day
Location Everywhere
More Information Click here
Daniel is the father of a little girl called Amelie who was diagnosed with Tay-Sachs in March 2011 when she was 15 months old. After slowly coming to terms with what the future held, Daniel, his wife Patricia and their friends started THE CATS FOUNDATION to raise awareness of the disease and to provide fund raising opportunities so that a potential treatment can be found.

Leave a Reply

Your email address will not be published. Required fields are marked *

You may use these HTML tags and attributes: <a href="" title=""> <abbr title=""> <acronym title=""> <b> <blockquote cite=""> <cite> <code> <del datetime=""> <em> <i> <q cite=""> <s> <strike> <strong>

*