"We are pleased to bring you the latest update to the research into a potential treatment for Tay-Sachs and Sandhoff disease being undertaken at the University of Cambridge and Addenbrookeâs Hospital.
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We are delighted to announce that The Cure & Action for Tay-Sachs (CATS) Foundation has formed a new partnership with Tudor Reilly Health.
On the 14th May The CATS Foundation hosted the Gene Therapy for GM2 Gangliosidosis Scientific Meeting at the Royal Society of Medicine.
On the 14th May The CATS Foundation is holding the Gene Therapy for GM2 Gangliosidosis Scientific Meeting at the RSM in London.
At the end of June we held our Annual General Meeting (AGM) to discuss the third year at The Cure & Action for Tay-Sachs (CATS) Foundation. At the AGM it gave us the opportunity to celebrate our highlights, the work we have undertaken and to answer any questions our supporters had.
The Cure & Action for Tay-Sachs (CATS) Foundation Trustee Annual Report - 1st July 2012 - 30th June 2013.
The Cure & Action for Tay-Sachs (CATS) Foundation Trustee Annual Report - June 2011 - 30th June 2012
The CATS Foundation was invited to attend the ECRD conference in Berlin.
In April 2014 we made another grant to the research team investigating a potential treatment for Tay-Sachs and Sandhoff disease!
We are delighted to bring you an update on the research into Tay-Sachs and Sandhoff disease in the UK.
The research team investigating a potential treatment for Tay-Sachs have been provided a Â£2.84 million grant from the UK Medical Research Council to begin work on a trial for Tay-Sachs and Sandhoff disease.
In June 2013 The CATS Foundation made a donation of Â£35,000 to the team leading the research into Tay-Sachs.
Rare Disease UK (RDUK) is asking for everyoneâs help in raising political awareness of rare diseases ahead of Rare Disease Day on the 28th February 2013.
Here is a video of the full highlights from our AGM held in October 2012.
Here is a short announcement regarding the current progress of the research into Tay-Sachs in the UK after the problems encountered by the US trial.
On the 9th November 2012 The CATS Foundation will be hosting its first AGM at Hotel Megaro in North London. Please RSVP by the 15th October 2012.
In January 2012 a research article called âThe cellular pathology of lysosomal diseaseâ (Cox and CachÃ³n-GonzÃ¡lez 2012) was published in The Journal of Pathology which examined lysosomes.
In December 2010 a research article was published which examined a form of Tay-Sachs that occurs in Jacob sheep.
Here is the latest update on The CATS Foundation - we have been very busy since the beginning of 2012!
In 2006 a research article called âThe Natural History of Juvenile or Subacute GM2 Gangliosidosis: 21 New Cases and Literature Review of 134 Previously Reportedâ was published in the Official Journal of the American Academy of Pediatrics.
On Rare Disease Day 2012 the public consultation into rare diseases was launched into looking to improve services for patients and to facilitate research.
You can now donate to The CATS Foundation through JustGiving!
In November 2011 a research article called âNatural History of Infantile GM2 Gangliosidosisâ was published in the Official Journal of the Maerican Acadamy of Pediatrics.
Although this research article was published in 2006 we thought it was important that the findings in the study titled âEffective gene therapy in an authentic model of Tay-Sachs related diseasesâ were highlighted once again.
The CATS Foundation provides a support network, equipment and information to those families affected by Tay-Sachs.
Here is the Trustee Meeting Summary - November 2011 which was attend by the trustees of The CATS Foundation to discuss the charity
A new study by Professor Cox and his team was published online in November 2011 which looked at children diagnosed with GM2 gangliosidosis in the UK.
Thank you to everyone who has support us - here are The CATS Foundation Fundraising Totals in 2011. The charity has been going from strength to strength - lets hope this continues!
We have made a lot of progress in the last three months with the development of The CATS Foundation. We have hit new fundraising targets and managed to raise awareness through link ups with various organizations.
We are fortunate to have direct access to the main research team into Tay-Sachs who are now providing us with regular updates of their work.
After a long process THE CATS FOUNDATION is now a registered charity! The registration number for THE CATS FOUNDATION is 1144543.
We have given THE CATS FOUNDATION website a new look! It is now easier to find your way around the site and we have also added a few new features - these are shown below.
THE CATS FOUNDATION has now been up and running for three months and we wanted to give everyone an update on our progress!