Our third year AGM at The CATS Foundation – 2013/2014

Our third year AGM at The CATS Foundation  – 2013/2014

At the end of June we held our Annual General Meeting (AGM) to discuss the third year at The Cure & Action for Tay-Sachs (CATS) Foundation. At the AGM it gave us the opportunity to celebrate our highlights, the work we have undertaken and to answer any questions our supporters had. Some of the issues which were discussed included:

  • The progress into the research and a potential treatment for Tay-Sachs and Sandhoff disease
  • Our fundraising success – we raised over £70, 000 in our third year
  • The first ever scientific meeting for Tay-Sachs and Sandhoff diseases in the UK planned for 2015
  • An overview of the events held for the charity and those planned for the future

Due to most of our member families being unable to travel long distances with their children affected by Tay-Sachs and Sandhoff disease, we decided to hold the AGM online. This enabled everyone to participate from the comfort of their own home whilst also being able to ask any questions through the online webinar system which was used.

A video of The CATS Foundation AGM can be viewed below by clicking below or can be viewed here.


Daniel is the father of a little girl called Amelie who was diagnosed with Tay-Sachs in March 2011 when she was 15 months old. After slowly coming to terms with what the future held, Daniel, his wife Patricia and their friends started THE CATS FOUNDATION to raise awareness of the disease and to provide fund raising opportunities so that a potential treatment can be found.

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